For decades, I’ve fought for my sons who were diagnosed late with cystic fibrosis and still face barriers to life-saving treatments. I continue to fight every day — taking no days off — because no ...

While relocating to a new state, my family faced some unexpected hurdles. But with the incredible support of our community, we survived the journey.

I never expected a simple musical hobby to introduce me to a global community of resilient and optimistic individuals. Each week, I now have the pleasure of interacting with those with CF around the ...

On behalf of the undersigned NAIC Consumer Representatives, we offer the attached report examining the impact of federal policy shifts on health insurance access and affordability. The report ...

The Oregon & SW Washington Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to ...

For more than 1.5 million people living with COPD, heart disease, pulmonary hypertension, pulmonary fibrosis, people awaiting lung transplants, and other advanced respiratory diseases, supplemental ...

Dear Majority Leader Thune, Minority Leader Schumer, Speaker Johnson and Minority Leader Jeffries: On behalf of the undersigned patient, healthcare professional and industry organizations, we urge you ...

Today, 27 leading patient, provider and professional organizations sent a letter to Congress to include the Supplemental Oxygen Access Reform (SOAR) Act (H.R. 2902/S.1406) in an end-of-year ...

During the 18 months I spent waiting for a double-lung transplant, I researched everything I could about the process. I asked post-transplant patients about the pain of the surgery, waking up, the ...